He is awakened early and fed his 'breakfast' through his stomach tube, then bathed, shaved and changed. The staff also attaches an amplifier with earphones. He is often in bed much of the morning, then watches his movies in the afternoon. He alternates between being in bed - and being turned regularly - with sitting in his wheelchair, to avoid bedsores. The staff also take him to his doctor appointments.
He usually watches a movie or TV in the evening and has his 'dinner.' He goes to bed early and generally sleeps soundly through the night.
In normal times, we visit him once or twice a week, usually on Saturday or Sunday. In addition his old roommate Alex Crespo and her son Elifel often visit on the weekends, as does our friend and Chris's godmother, Patricia Bryant.
MUSTS
His wheelchair has a motor to tilt it forward and back, and it must be recharged regularly. By 2021 it was not working well and we started the process of getting a new one - but it was delayed by covid. The design of a new one seemed to be back on track by spring 2022.
His amplifier batteries need to be checked regularly if he is wearing it, as a hearing aid.. It should be checked every day to make sure that the batteries are working, that it's turned on, and that the volume in the two ear pieces is balanced.
He can't trim his fingernails, so they need to be maintained. And his primary caregiver gives him a haircut every few weeks.
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